Let's go back, once again. I apologize for the back and forth, but as soon as I finish one entry I remember so much more that led to that entry that I feel I must explain. Ok, I want to explain. You get it, right?
Lennon's first year at Monarch Academy For Young Children didn't "just happen". I enrolled him when he was 2 years old, twice a week, while he was still receiving Regional Center Services. I knew that once he turned 3 years old he would transition out of the Early Start Program, but I didn't know what our next step would be. Protocol is to have assessments done as well as meetings with Regional Center to discuss our next move. Children either transition out (no further services needed), transition to Special Education Services with an IEP (Individual Education Plan) or continue with Regional Center Services as well as Special Education Services, (with a qualifying developmental disability). You can read more about that here.
When Lennon turned 3 he was transitioned to Special Education Services. And this meant he would be transferring to a Special Education Classroom for preschool, even though he was already enrolled at Monarch Academy. You could see my dilemma can't you? I needed more information before I made the decision on whether or not to take him out of Monarch.
The problem was that Lennon's birthday is on New Years Eve and the district shuts down for the holidays. So our meetings all took place prior to the holiday break with the explanation and expectation (on their part) that once the district reopened Lennon would join the special day classroom mid-year. This meant that I had the entire holiday break to ponder over what decision to make. I had a lot of questions, naturally. I knew how Monarch ran, but was completely oblivious to how a traditional special education classroom ran. I had no idea who the teacher would be and this meant that I couldn't get to know her prior to dropping Lennon off on his 1st day. That didn't sit well with me. I was told that I would be getting a call from the teacher over the break to discuss the new year and I planned on asking all my questions then.
Over the break I did get a call from the teacher and when I asked about drop off and pick up procedures I was told that I would be expected to drop Lennon off in front of the school and not only would I not "be allowed" to walk him to class, I would "not allowed" to stay with him in class. I expressed my concerns and stated that he is only 3 years old, it's his 1st time going to preschool and if he's not ok I will walk him to class. Her response? "He's a big boy, he'll be fine". I still angry laugh at that response today. When I made my concerns even clearer and asked to meet with her before school started so I could know who I was expected to leave my child with she said, "I can't meet with you before school starts, but I'll only have about 5-10 minutes between classes to meet with you". That was the last straw for me. She could hear the frustration in my tone, I'm sure, so she did her best to extinguish the now fueled conversation by saying she would mail me the details of the class and if I had any further concerns after I read through the paperwork to please call her back.
And that is how it was left. I felt angry. And confused. I talked about it with everyone I knew. I didn't know what to do. I was never the parent who just dropped off her child and walked away. Wasn't my style. Still isn't. So what... Was I supposed to turn down services? In a world where children with special needs may not be getting the services they need did I dare say thank you, but no thank you? Did I sign that paper that says I "refused services" and keep him in a private preschool? Well, the answer was yes. I picked the school where we were all already so comfortable and where I knew and trusted the teachers. I picked Monarch. I felt so strongly that I would not just leave my child at the front of a school where he would be left to walk to class all by himself with a group of kids he didn't know and a teacher I had never met that I was willing to say no to a special education classroom. He was 3 years old, (still a baby) and I put his emotional needs first.
Sunday, January 25, 2015
Saturday, January 10, 2015
Crying, Waiting, Hoping
The 2011/2012 school year was an eventful year and a year that became both a stepping stone and a catalyst for Anabelle and Lennon.
For each classroom at their preschool there are two teachers. The lead teacher in Lennon's class was also Anabelle's teacher her 1st year so I was pleased to see that Lennon would have the same experience. The assistant was a new teacher, but I could tell right away that she loved what she did and had a genuinely kind heart.
As the year progressed I noticed a disconnect in the lead teacher and the moment I felt the need to say something to the Director of the school was the exact same moment the assistant was promoted to the lead. It was a move that I fully supported and one that forever changed our experience at Monarch - in a positive impactful way. The new lead teacher and I kept in constant communication about Lennon's progress with his speech and I even emailed them the report from his sessions as well as the assessments that were done by the therapists. It was important that we were all on the same page as to what he needed.
Anabelle was in a classroom with a teacher who was amazing and truly got her. I strongly believe that year was the one that jumpstarted her developmental growth into a whole new level. One developmental milestone in particular that we had trouble with was potty training. And while Anabelle was doing well with pee it took her longer with poop. She reached that milestone her Pre-K year. She turned 5 that year and it was the 1st year she had requested a birthday party - theme and all. Prior to then I would throw small parties for her based upon what I knew she loved, but she had never actually made specific requests. For her 5th birthday she wanted a super hero party; and she wanted to dress up as Bat Girl. And it was awesome.
Adjusting to a family of 5 with an infant, 2 children in preschool part time, weekly speech therapy sessions and trying to earn extra money was tough, but I felt like we were managing, (I am pretty sure I was, thanks to my Placenta Encapsulation Pills). Anabelle had her struggles with school subjects and social skills and Lennon struggled with his communication, however I was learning and watching and trying my best to help them. It was difficult to manage without feeling like I was compromising my parenting of the other 2 while focusing on the one, but I imagine every parent with multiple children feels that at one time or another... right? I do remember thinking that I desperately wanted to fast forward Anabelle and Lennon's growth so Tiger would have older siblings to talk to and play with. I was also desperate to not have a 3rd child with developmental concerns. Was there anything I could do? I still remember random people making random comments like, "oh how nice it must have been for Lennon to have an older sibling to talk to and play with" and all I wanted to say back was, "well, actually it wasn't like that because his older sister was delayed and only tandem played". Instead I said nothing and just secretly hoped that Tiger would have that as he grew up.
The 2011/2012 school year was a good one and I felt hopeful for a positive gain from there. And then summer arrived and without the financial capabilities to continue, school came to an end. We were at the peak of getting what we needed and we slowly, but surely began to plummet. I kept Lennon in speech based upon approved authorization requests, (in writing might I add) and then Anthem Blue Cross (shame on you!) denied all claims. Which was totally awesome because I totally had thousands of dollars laying around to pay for those sessions, (can you sense my angry sarcasm?).
Unfortunately our need to try to make ends meet overshadowed much of everything else that summer. Eric had a full time job and I was able to pick up some part time work, but we still found ourselves drowning in debt. We were fortunate, however, to have family who was willing and able to help. I will forever be grateful to our family for their help and support. Whether it was with babysitting, helping us financially or just by being there. We are definitely rich with love and support.
The summer of 2012 proved to be incredibly difficult and when it came time to go back to school the following fall I could see just how much it had truly affected Lennon. The break in his schedule, routine and school structure hindered his developmental growth and caused him to need more.
Anabelle won the lottery, literally, and got into the local charter school I was desperate for her to go to for Kindergarten and I re-enrolled Lennon 3 days/week at Monarch. And it was the fall of 2012 and the events thereafter that catapulted me into being the advocate my children needed me to be. There is still a lot to explain between then and now, and I will blog all about it, but I feel it's important to mark this time frame as the catalyst to where we are today.
For each classroom at their preschool there are two teachers. The lead teacher in Lennon's class was also Anabelle's teacher her 1st year so I was pleased to see that Lennon would have the same experience. The assistant was a new teacher, but I could tell right away that she loved what she did and had a genuinely kind heart.
As the year progressed I noticed a disconnect in the lead teacher and the moment I felt the need to say something to the Director of the school was the exact same moment the assistant was promoted to the lead. It was a move that I fully supported and one that forever changed our experience at Monarch - in a positive impactful way. The new lead teacher and I kept in constant communication about Lennon's progress with his speech and I even emailed them the report from his sessions as well as the assessments that were done by the therapists. It was important that we were all on the same page as to what he needed.
Anabelle was in a classroom with a teacher who was amazing and truly got her. I strongly believe that year was the one that jumpstarted her developmental growth into a whole new level. One developmental milestone in particular that we had trouble with was potty training. And while Anabelle was doing well with pee it took her longer with poop. She reached that milestone her Pre-K year. She turned 5 that year and it was the 1st year she had requested a birthday party - theme and all. Prior to then I would throw small parties for her based upon what I knew she loved, but she had never actually made specific requests. For her 5th birthday she wanted a super hero party; and she wanted to dress up as Bat Girl. And it was awesome.
My Bat Girl at Superhero Headquarters
(she picked the outfit - pink boots and all - by herself)
Adjusting to a family of 5 with an infant, 2 children in preschool part time, weekly speech therapy sessions and trying to earn extra money was tough, but I felt like we were managing, (I am pretty sure I was, thanks to my Placenta Encapsulation Pills). Anabelle had her struggles with school subjects and social skills and Lennon struggled with his communication, however I was learning and watching and trying my best to help them. It was difficult to manage without feeling like I was compromising my parenting of the other 2 while focusing on the one, but I imagine every parent with multiple children feels that at one time or another... right? I do remember thinking that I desperately wanted to fast forward Anabelle and Lennon's growth so Tiger would have older siblings to talk to and play with. I was also desperate to not have a 3rd child with developmental concerns. Was there anything I could do? I still remember random people making random comments like, "oh how nice it must have been for Lennon to have an older sibling to talk to and play with" and all I wanted to say back was, "well, actually it wasn't like that because his older sister was delayed and only tandem played". Instead I said nothing and just secretly hoped that Tiger would have that as he grew up.
The 2011/2012 school year was a good one and I felt hopeful for a positive gain from there. And then summer arrived and without the financial capabilities to continue, school came to an end. We were at the peak of getting what we needed and we slowly, but surely began to plummet. I kept Lennon in speech based upon approved authorization requests, (in writing might I add) and then Anthem Blue Cross (shame on you!) denied all claims. Which was totally awesome because I totally had thousands of dollars laying around to pay for those sessions, (can you sense my angry sarcasm?).
Unfortunately our need to try to make ends meet overshadowed much of everything else that summer. Eric had a full time job and I was able to pick up some part time work, but we still found ourselves drowning in debt. We were fortunate, however, to have family who was willing and able to help. I will forever be grateful to our family for their help and support. Whether it was with babysitting, helping us financially or just by being there. We are definitely rich with love and support.
The summer of 2012 proved to be incredibly difficult and when it came time to go back to school the following fall I could see just how much it had truly affected Lennon. The break in his schedule, routine and school structure hindered his developmental growth and caused him to need more.
Anabelle won the lottery, literally, and got into the local charter school I was desperate for her to go to for Kindergarten and I re-enrolled Lennon 3 days/week at Monarch. And it was the fall of 2012 and the events thereafter that catapulted me into being the advocate my children needed me to be. There is still a lot to explain between then and now, and I will blog all about it, but I feel it's important to mark this time frame as the catalyst to where we are today.
Sunday, December 7, 2014
Don't Let Me Down
Sometimes when I hug Lennon, I cry. Not because I'm sad, well, I am a little sad, but mainly because I hug him and I just want so badly for life to come easier to him. How do I do that? How do I change his future? How do I set him on a path that I am certain of?
After Anabelle started preschool I had time to focus on Lennon. And at that point in time, when he was almost 2 years old, there wasn't much to worry about. He seemed like a "typical" kid and the only thing that I began to notice was his communication was where Anabelle's was... and even a little bit more delayed. When I took him to the pediatrician for his well visits the Dr. would make comments like, "he can see me... he knows I'm here". We all saw it. We all saw Lennon look at us, smile at us, notice when I left the room, give great eye contact. He knew us and his family and when we took a week off to travel as a family in April 2010, (Lennon was 14 months old), he handled the plane and the trip like a champ. In fact, both he and Anabelle did. We came back from that trip and walked right into Mother's Day... We went to my moms house to celebrate and I was almost distracted enough to notice that my period hadn't come yet. There was no mistaking it. I knew right then and there. I was pregnant. And when most people would celebrate such a beautiful thing, I cried. In the privacy of my own home of course. But I cried. In my mind I was finally settling down and into a routine life with my family of 4. I had a lot figured out and I was getting Anabelle what she needed. I just wasn't prepared to handle what was next.
The next 9 months were by far my absolute worst in pregnancy history. I was sicker than I had ever been and more often than not I could barely muster up enough energy to load Anabelle and Lennon in the car to drive Anabelle to school. And then go back 3 hours later to pick her up. Leaving the couch was so difficult for me. And this is where my guiltiest of guiltiest of guilts come in. Most of the time I left Lennon to his own vices... watching TV. I knew it wasn't the best choice, but I was so tired. And so sick. And so not present. During what some would argue were the most crucial of his developmental years (months 14 through 2 years old) I was sick and pregnant and neglectful. I scheduled play dates here and there and tried my best to expose my children to social situations while still dealing with a child who might run away. I feel like I tried my best, but perhaps I could have tried harder. I will always feel like I could have done more.
When my pregnancy reached the end and I was gearing up for the home birth I had wanted for so long I started to notice things in Lennon that brought me back to a time when worry ran my life. A time that was not that far behind me. Here I was, preparing to bring a new life into this world and all of a sudden I was hit with the idea that my baby boy needed more from me. How dare I not see this sooner? How dare I not notice earlier? How could I assume that everything was fine, which was purely based on fear. It's like everything I was afraid of with Anabelle was hitting me with Lennon. And it was only the beginning.
Lennon turned 2 on New Years Eve of 2010 and a couple weeks later I gave birth at home to a heathy baby boy. We named him Tiger, after his daddy's childhood nickname. I enrolled Lennon in preschool a couple months after that, hoping that would help him along with his speech and language and a few months later I had him assessed by our local Regional Center. Those findings qualified him for speech twice a week as well as a once weekly group therapy session. I was in denial. I admit it. I didn't want to believe that I was going through this again and considering how well Anabelle was doing I wanted to believe Lennon would have the same outcomes and developmental growth. If you could have been a fly on the wall in my brain you would have slapped me to snap me out of my talking to myself a hundred miles a minute. I wish someone did.
Sometimes I feel like 2008 - 2011 was such a blur. And other times I remember everything and can't stop the tears from falling. There were so many happy time too, I promise. Oh man, so many happy times. Smiles and laughs for days. Those smiles and laughs is what got me through everything else.
After Anabelle started preschool I had time to focus on Lennon. And at that point in time, when he was almost 2 years old, there wasn't much to worry about. He seemed like a "typical" kid and the only thing that I began to notice was his communication was where Anabelle's was... and even a little bit more delayed. When I took him to the pediatrician for his well visits the Dr. would make comments like, "he can see me... he knows I'm here". We all saw it. We all saw Lennon look at us, smile at us, notice when I left the room, give great eye contact. He knew us and his family and when we took a week off to travel as a family in April 2010, (Lennon was 14 months old), he handled the plane and the trip like a champ. In fact, both he and Anabelle did. We came back from that trip and walked right into Mother's Day... We went to my moms house to celebrate and I was almost distracted enough to notice that my period hadn't come yet. There was no mistaking it. I knew right then and there. I was pregnant. And when most people would celebrate such a beautiful thing, I cried. In the privacy of my own home of course. But I cried. In my mind I was finally settling down and into a routine life with my family of 4. I had a lot figured out and I was getting Anabelle what she needed. I just wasn't prepared to handle what was next.
The next 9 months were by far my absolute worst in pregnancy history. I was sicker than I had ever been and more often than not I could barely muster up enough energy to load Anabelle and Lennon in the car to drive Anabelle to school. And then go back 3 hours later to pick her up. Leaving the couch was so difficult for me. And this is where my guiltiest of guiltiest of guilts come in. Most of the time I left Lennon to his own vices... watching TV. I knew it wasn't the best choice, but I was so tired. And so sick. And so not present. During what some would argue were the most crucial of his developmental years (months 14 through 2 years old) I was sick and pregnant and neglectful. I scheduled play dates here and there and tried my best to expose my children to social situations while still dealing with a child who might run away. I feel like I tried my best, but perhaps I could have tried harder. I will always feel like I could have done more.
When my pregnancy reached the end and I was gearing up for the home birth I had wanted for so long I started to notice things in Lennon that brought me back to a time when worry ran my life. A time that was not that far behind me. Here I was, preparing to bring a new life into this world and all of a sudden I was hit with the idea that my baby boy needed more from me. How dare I not see this sooner? How dare I not notice earlier? How could I assume that everything was fine, which was purely based on fear. It's like everything I was afraid of with Anabelle was hitting me with Lennon. And it was only the beginning.
Lennon turned 2 on New Years Eve of 2010 and a couple weeks later I gave birth at home to a heathy baby boy. We named him Tiger, after his daddy's childhood nickname. I enrolled Lennon in preschool a couple months after that, hoping that would help him along with his speech and language and a few months later I had him assessed by our local Regional Center. Those findings qualified him for speech twice a week as well as a once weekly group therapy session. I was in denial. I admit it. I didn't want to believe that I was going through this again and considering how well Anabelle was doing I wanted to believe Lennon would have the same outcomes and developmental growth. If you could have been a fly on the wall in my brain you would have slapped me to snap me out of my talking to myself a hundred miles a minute. I wish someone did.
Sometimes I feel like 2008 - 2011 was such a blur. And other times I remember everything and can't stop the tears from falling. There were so many happy time too, I promise. Oh man, so many happy times. Smiles and laughs for days. Those smiles and laughs is what got me through everything else.
Monday, November 24, 2014
Here Comes The Sun
"Beautiful and graceful, varied and enchanting, small but approachable, butterflies lead you to the sunny side of life. And everyone deserves a little sunshine". ~Jeffrey Glassberg
I remember the day I toured Monarch Academy... I walked in after having a brief phone call with one of the directors and learning that their teaching styles and philosophy were on par with what I wanted for Anabelle. I sat in on what was at that time the Mommy & Me Early Preschool Class for 2-year olds and I toured their indoor playground, bathroom area and kitchen. I was not planning on just dropping Anabelle off and leaving if I enrolled her so I needed a preschool who would understand that. I also needed a preschool to understand the importance of children developing at their own pace, that potty training is in fact a developmental milestone, (Anabelle was not potty trained at her time of enrollment - and did you know that there are actual preschools out there who CHARGE parents if their children have an accident or are not potty trained?! Despicable!) and that children need to learn through play. I found it. I couldn't believe it. Everything they said and everything I read sounded so perfect. If I didn't see it with my own eyes I would say it was all too good to be true. I remember tears filling up in my eyes thinking that I actually found our 1st home away from home where I could trust my babies to be taken care of and supported. I agonized over the decision to finish her last speech session without reenrolling her, however finances were a large factor and it was a natural progression to move onto a social atmosphere. So, we enrolled Anabelle 2 days/week and on Tuesdays and Thursdays, Lennon and I would drop her off and then sit in the back of the classroom and enjoy our view. It was nice that I was able to bring him even though I had an abundance of help with babysitting from my family who lived close by. That was a huge victory to cross off of what felt like a never ending list of important to do's. Still so grateful till this day for my family at Monarch.
So, there I was... a self proclaimed recluse now committed to leaving my house twice a week with my babies to a place where other parents and children were. The very thing I was trying to avoid. The catch-22 of it all. The good news is I was not the one in charge. I got to let Anabelle be in a classroom with a teacher and other kids and I got to watch how she acted, reacted, played and learned. I could also watch her without her knowing as the preschool has monitors set up in a room off the kitchen. She separated from me easily, which made me happy and ok, maybe a little sad. Just a little! I was grateful she was so open to new things and that I could leave if Lennon needed me to.
Anabelle turned 3 years old just a couple months after that and all I could think was that I couldn't wait for Lennon to turn 2 so I could enroll him also. Just 10 months to go! Or so I thought.
I remember the day I toured Monarch Academy... I walked in after having a brief phone call with one of the directors and learning that their teaching styles and philosophy were on par with what I wanted for Anabelle. I sat in on what was at that time the Mommy & Me Early Preschool Class for 2-year olds and I toured their indoor playground, bathroom area and kitchen. I was not planning on just dropping Anabelle off and leaving if I enrolled her so I needed a preschool who would understand that. I also needed a preschool to understand the importance of children developing at their own pace, that potty training is in fact a developmental milestone, (Anabelle was not potty trained at her time of enrollment - and did you know that there are actual preschools out there who CHARGE parents if their children have an accident or are not potty trained?! Despicable!) and that children need to learn through play. I found it. I couldn't believe it. Everything they said and everything I read sounded so perfect. If I didn't see it with my own eyes I would say it was all too good to be true. I remember tears filling up in my eyes thinking that I actually found our 1st home away from home where I could trust my babies to be taken care of and supported. I agonized over the decision to finish her last speech session without reenrolling her, however finances were a large factor and it was a natural progression to move onto a social atmosphere. So, we enrolled Anabelle 2 days/week and on Tuesdays and Thursdays, Lennon and I would drop her off and then sit in the back of the classroom and enjoy our view. It was nice that I was able to bring him even though I had an abundance of help with babysitting from my family who lived close by. That was a huge victory to cross off of what felt like a never ending list of important to do's. Still so grateful till this day for my family at Monarch.
So, there I was... a self proclaimed recluse now committed to leaving my house twice a week with my babies to a place where other parents and children were. The very thing I was trying to avoid. The catch-22 of it all. The good news is I was not the one in charge. I got to let Anabelle be in a classroom with a teacher and other kids and I got to watch how she acted, reacted, played and learned. I could also watch her without her knowing as the preschool has monitors set up in a room off the kitchen. She separated from me easily, which made me happy and ok, maybe a little sad. Just a little! I was grateful she was so open to new things and that I could leave if Lennon needed me to.
Anabelle turned 3 years old just a couple months after that and all I could think was that I couldn't wait for Lennon to turn 2 so I could enroll him also. Just 10 months to go! Or so I thought.
Sunday, November 23, 2014
A Hard Day's Night
We celebrated every milestone in the Kornick household. No matter how big or small, it was a growth in a positive direction and worthy of praise. One step forward was always something I longed for and when it happened, even in the slightest of ways I felt so relieved. So grateful. And then I would watch and wait until the next step. Almost obsessively.
While Anabelle was working so hard on her speech I was determined to not have to go through this again with another child, (like it was my choice). I brought Lennon to every speech session in the hopes that he would somehow benefit from sitting there and hearing the lessons, (why not, right?). During Lennon's infancy I did not have any concerns that prompted me to start any early interventions. Other than the fact that he was the opposite of Anabelle in that he was up more often to nurse at night, needed to be held constantly and babbled like crazy there were no "red flags" in his early behavior. He was alert, had great eye contact, smiled at me when I smiled, etc. Everything an infant was "supposed" to do. I have read and been told about so many developmental charts my brain feels like it just might explode. While Anabelle was making great strides at speech, Lennon was happy to watch from the sidelines... as long as he was nursing or snacking. I could take that kid anywhere if I had his favorite snack to occupy his time so I could focus on not losing Anabelle. She was a runner and I would often need a friend or family member to accompany me if I went to the park or the mall (or anywhere) because of my worry about Anabelle running away while I was nursing Lennon or tending to him. It was always about Anabelle. And I mean that in a good, not negative way. I was just so worried about her and scared to death that she would run in the street or into some strangers arms, which was not far fetched considering she would often times ask strangers for their food or try to share her food with them.
Lennon cruised the developmental chart, month by month. Sat up around 5 months, cruised around 9 months, walked around 13 months, smiled, laughed, waved and was a very happy baby. His favorite food was beans. Pinto beans. He was on the right path and I was feeling so good about the fact
fact that we were seeing the light at the end of the tunnel with the interventions for Anabelle.
It wasn't until Lennon's 2 year approached that I began to see the signs. Again. He had words, but not as many as he "should". And he was also not stringing 2-3 words together. He was aware of his surroundings and I always knew what he wanted, however he too had a hard time communicating his feelings. And he too was a screamer. I had so many days where I questioned everything and wondered why and how and obviously it was something I did to have TWO children with concerns. Nothing could ever be "normal", right? I began to just avoid public situations. I remember one time I took Anabelle to an indoor bounce house near my house. I walked in with both kids, sat Lennon down with his snacks and went to play with Anabelle. She freaked out. Screaming and crying. It turned out the loud fans in the bounce house seriously affected her and I didn't realize it until that moment. Lennon didn't even get a chance to play. He just sat there, eating his snacks while I tried to calm Anabelle. And then we left. And I was at an all time low, feeling like there was nowhere for me to go where I wasn't worried about losing a child, where my children wouldn't be scared or where people wouldn't stare at them or question their "weird" behavior. I clearly lacked the confidence as a parent to stand up for my children. Mainly because I was still so full of questions and seeking answers. Now for both of my children. There had to be some place for me to go... Someone who would understand and be supportive. I know I had the support of a handful of friends, and that it was more me. More the fact that I was afraid of how people would interpret my children and that by me constantly translating for them they might begin to question their development also. And then I remembered the great advice the behavioralist gave me when she came to my house. Find a great preschool for Anabelle. One where she would be in a low teacher:student ratio. One where she would be allowed to explore and learn through play. And one where she would be supported and loved. So, when Anabelle was a few months shy of her 3rd birthday and Lennon was just over a year I enrolled her in a local family owned preschool that welcomed us with open arms and made us feel like we were apart of the family. Light in sight...
While Anabelle was working so hard on her speech I was determined to not have to go through this again with another child, (like it was my choice). I brought Lennon to every speech session in the hopes that he would somehow benefit from sitting there and hearing the lessons, (why not, right?). During Lennon's infancy I did not have any concerns that prompted me to start any early interventions. Other than the fact that he was the opposite of Anabelle in that he was up more often to nurse at night, needed to be held constantly and babbled like crazy there were no "red flags" in his early behavior. He was alert, had great eye contact, smiled at me when I smiled, etc. Everything an infant was "supposed" to do. I have read and been told about so many developmental charts my brain feels like it just might explode. While Anabelle was making great strides at speech, Lennon was happy to watch from the sidelines... as long as he was nursing or snacking. I could take that kid anywhere if I had his favorite snack to occupy his time so I could focus on not losing Anabelle. She was a runner and I would often need a friend or family member to accompany me if I went to the park or the mall (or anywhere) because of my worry about Anabelle running away while I was nursing Lennon or tending to him. It was always about Anabelle. And I mean that in a good, not negative way. I was just so worried about her and scared to death that she would run in the street or into some strangers arms, which was not far fetched considering she would often times ask strangers for their food or try to share her food with them.
Lennon cruised the developmental chart, month by month. Sat up around 5 months, cruised around 9 months, walked around 13 months, smiled, laughed, waved and was a very happy baby. His favorite food was beans. Pinto beans. He was on the right path and I was feeling so good about the fact
fact that we were seeing the light at the end of the tunnel with the interventions for Anabelle.
It wasn't until Lennon's 2 year approached that I began to see the signs. Again. He had words, but not as many as he "should". And he was also not stringing 2-3 words together. He was aware of his surroundings and I always knew what he wanted, however he too had a hard time communicating his feelings. And he too was a screamer. I had so many days where I questioned everything and wondered why and how and obviously it was something I did to have TWO children with concerns. Nothing could ever be "normal", right? I began to just avoid public situations. I remember one time I took Anabelle to an indoor bounce house near my house. I walked in with both kids, sat Lennon down with his snacks and went to play with Anabelle. She freaked out. Screaming and crying. It turned out the loud fans in the bounce house seriously affected her and I didn't realize it until that moment. Lennon didn't even get a chance to play. He just sat there, eating his snacks while I tried to calm Anabelle. And then we left. And I was at an all time low, feeling like there was nowhere for me to go where I wasn't worried about losing a child, where my children wouldn't be scared or where people wouldn't stare at them or question their "weird" behavior. I clearly lacked the confidence as a parent to stand up for my children. Mainly because I was still so full of questions and seeking answers. Now for both of my children. There had to be some place for me to go... Someone who would understand and be supportive. I know I had the support of a handful of friends, and that it was more me. More the fact that I was afraid of how people would interpret my children and that by me constantly translating for them they might begin to question their development also. And then I remembered the great advice the behavioralist gave me when she came to my house. Find a great preschool for Anabelle. One where she would be in a low teacher:student ratio. One where she would be allowed to explore and learn through play. And one where she would be supported and loved. So, when Anabelle was a few months shy of her 3rd birthday and Lennon was just over a year I enrolled her in a local family owned preschool that welcomed us with open arms and made us feel like we were apart of the family. Light in sight...
Saturday, November 15, 2014
Eight Days A Week
Parenting = 24/7. Right? I mean, babies go to bed, take naps and when they're older go to school and that allows for some free time, however we are never truly off the clock. And when you have children your days get longer and your nights get shorter. That's pretty much how I felt after Lennon was born. That poor kid didn't stand a chance from the day he was born... as much as I was absolutely consumed with love for my baby boy, my miracle, if you will, I was totally and completely consumed with worry about my baby girl. And knowing what I know today, this absolutely pains me to write.
How was I supposed to do this exactly? Having 4 months to prepare for baby number 2, while planning a move that overwhelmed me to no end, all while being thrown into a full blown search for answers for Anabelle left me feeling all kinds of lonely. And there it was. I was lonely. I mean, my husband was amazing and supportive and the best daddy ever, but I really did a number on myself with it came to the "why" and the "how" of it all. I wasn't very good at expressing my fears or worries, which often led to me holding it all inside. That and I felt burned. I recently learned about The Seven Habits of Highly Effective People and the one that stuck out the most was "Seek First to Understand, Then to be Understood". I wish I knew this back then and that I would have had the guts to tell a couple people to seek first to understand what I was going through. Guess I do now.
Anabelle often screamed at me when she was mad. I mean, loud, high pitched screaming. It was as if she was frustrated because she couldn't communicate her feelings and so she would just scream. And every time she did it I felt as if everyone was watching me. I was "that mom" who let her kid have tantrums and scream. I worried so much about that shit. Most a days I felt like screaming myself. I would be lying if I said I never did. As much as I was told Anabelle was developing in a forward moving progression and she was doing great I constantly wondered if somehow I was missing something. I felt helpless during her visits with specialists, like I was sitting on the sidelines with Lennon and thinking that he would be our talker and we would never have to go through this again. It was almost as if I had jinxed myself.
I got a lot of suggestions and recommendations of what I should or could do for Anabelle, but nobody had any answers. When Anabelle was being assessed for Regional Center they sent someone to my home to observe her and to ask me a few questions. She was a kind woman and she was one of the few who really got Anabelle. She told me to take my time in finding a great preschool for her and that she would be fine. She just needed to be allowed to develop at her own pace. Why was I in such a hurry to move her along? Oh yeah, because I was the only one who could translate for her and she struggled with communication. If I could just fast forward to a day where her struggle was over I would have done it in a heartbeat. Still would.
Over the next few months I continued to take Anabelle to her speech appointments and with Lennon in tow we would sit quietly while they worked so hard on her expressive and receptive language. Small phrases that consisted of 2 and 3 words that so many children her age were uttering without any interventions at all. What was that like, I wondered. I had no concept of what it was like to have a "typically developing child". I remember having conversations with Eric that ended with me asking if I was ever going to have a conversation with my daughter. An actual conversation. I hit a wall and just couldn't see it. And then, as if she knew I was hitting a wall, Anabelle had an amazing and memorable day at speech.
For some reason Anabelle really struggled with the word "I". She had never said it. No matter how many times her therapist tried to get her to repeat it, she didn't. Couldn't? Wouldn't? It just didn't happen. When Anabelle wanted something she would just say the word, rather than "I want" or "Can I please have..." For example, "nanas" mean she wanted to nurse and "lechitas" (spanish for milk) meant she wanted milk. Her speech therapist was determined to get her to say "I" followed by want and then the item she wanted. After several attempts of trying to get Anabelle to repeat after her, she made a series of sounds, "ah ah ah ah" which Anabelle finally repeated. And then the therapist, without skipping a beat, said, "I"! And Anabelle did it! She repeated after her and said, "I"! Eric was there that day and he and I both cheered and I cried. Who would've thought that such a small milestone would instill such an emotional response? It was amazing. And it was the sign of hope that we all needed.
How was I supposed to do this exactly? Having 4 months to prepare for baby number 2, while planning a move that overwhelmed me to no end, all while being thrown into a full blown search for answers for Anabelle left me feeling all kinds of lonely. And there it was. I was lonely. I mean, my husband was amazing and supportive and the best daddy ever, but I really did a number on myself with it came to the "why" and the "how" of it all. I wasn't very good at expressing my fears or worries, which often led to me holding it all inside. That and I felt burned. I recently learned about The Seven Habits of Highly Effective People and the one that stuck out the most was "Seek First to Understand, Then to be Understood". I wish I knew this back then and that I would have had the guts to tell a couple people to seek first to understand what I was going through. Guess I do now.
Anabelle often screamed at me when she was mad. I mean, loud, high pitched screaming. It was as if she was frustrated because she couldn't communicate her feelings and so she would just scream. And every time she did it I felt as if everyone was watching me. I was "that mom" who let her kid have tantrums and scream. I worried so much about that shit. Most a days I felt like screaming myself. I would be lying if I said I never did. As much as I was told Anabelle was developing in a forward moving progression and she was doing great I constantly wondered if somehow I was missing something. I felt helpless during her visits with specialists, like I was sitting on the sidelines with Lennon and thinking that he would be our talker and we would never have to go through this again. It was almost as if I had jinxed myself.
I got a lot of suggestions and recommendations of what I should or could do for Anabelle, but nobody had any answers. When Anabelle was being assessed for Regional Center they sent someone to my home to observe her and to ask me a few questions. She was a kind woman and she was one of the few who really got Anabelle. She told me to take my time in finding a great preschool for her and that she would be fine. She just needed to be allowed to develop at her own pace. Why was I in such a hurry to move her along? Oh yeah, because I was the only one who could translate for her and she struggled with communication. If I could just fast forward to a day where her struggle was over I would have done it in a heartbeat. Still would.
Over the next few months I continued to take Anabelle to her speech appointments and with Lennon in tow we would sit quietly while they worked so hard on her expressive and receptive language. Small phrases that consisted of 2 and 3 words that so many children her age were uttering without any interventions at all. What was that like, I wondered. I had no concept of what it was like to have a "typically developing child". I remember having conversations with Eric that ended with me asking if I was ever going to have a conversation with my daughter. An actual conversation. I hit a wall and just couldn't see it. And then, as if she knew I was hitting a wall, Anabelle had an amazing and memorable day at speech.
For some reason Anabelle really struggled with the word "I". She had never said it. No matter how many times her therapist tried to get her to repeat it, she didn't. Couldn't? Wouldn't? It just didn't happen. When Anabelle wanted something she would just say the word, rather than "I want" or "Can I please have..." For example, "nanas" mean she wanted to nurse and "lechitas" (spanish for milk) meant she wanted milk. Her speech therapist was determined to get her to say "I" followed by want and then the item she wanted. After several attempts of trying to get Anabelle to repeat after her, she made a series of sounds, "ah ah ah ah" which Anabelle finally repeated. And then the therapist, without skipping a beat, said, "I"! And Anabelle did it! She repeated after her and said, "I"! Eric was there that day and he and I both cheered and I cried. Who would've thought that such a small milestone would instill such an emotional response? It was amazing. And it was the sign of hope that we all needed.
Tuesday, November 11, 2014
...With A Little Help From My Friends.
When I decided to write this blog, I made the decision to just put it all out there. I no longer felt the need (or want) to keep everything inside and since writing it all down has helped me in the past I turn to all of you to continue to do so. There is no "road map" to where I am going with this blog. I am pretty much reliving my life from Anabelle's birth through today and it is my hope that you'll go along for the ride. I also feel the need to let you know that because I don't have it all mapped out, I will often feel the need to go back to before my previous blog entry was based upon. And on that note...
Having a baby for me meant I was able to be the mother I always envisioned I would be. I would share moments of firsts with those around us and I would bask in the glow of what being a new mommy most often times means. And I did. Anabelle was such a joy. My sweet angel of a baby who slept and nursed and cried just enough to make me feel needed as her mama. She hit her milestones and did what she was "supposed" to do through her 1st 18 or so months. I had no idea what I was doing as a mother, but I knew she was mine and she was amazing. And Eric... oh man. To see him be a daddy just melted my fricken heart. Still does.
Being a new mom and having a child with behaviors, or a lack of behaviors, that are cause for concern can be so terrifying. And the circle I surrounded myself with at the time lacked the empathy I needed which made me feel completely alone. The only guides I had to go by were my friends babies and by their development, Anabelle was so behind. She just was not doing what they were doing. And instead of building a mountain of support I felt a whisper of "what is wrong with her" and could just feel that all eyes on were on her. I was even told by a friend during a play date that she was told Anabelle is Autistic. Which at that time just crushed me. Absolutely crushed me that the people I trusted to be my friends and with my fears about what could be wrong with my baby girl were talking about her behind our backs. The truth of the matter was Anabelle was developmentally delayed and did not have a diagnosis of Autism. I had taken her to doctor appointments, had her well visits and had her seen by a neurologist and an eye doctor. I put her through assessments and answered 100's of questions. She was just developing at her own pace is what I was told. And I agreed. Being a "late developer" was genetic as I didn't talk much until I was 3 or 4. The puzzle was Anabelle's to put together and she was doing it one piece at a time. And while I could offer her support to help, there was nothing I could do to rush the process.
None of this stopped my closest friends from talking about her as if she was Autistic. And in a world where self doubt was in abundance, the last thing I needed was the shadow of doubt that was cast upon me by those around me. For me that was the end of it. I needed to disconnect. Education was the key and it was clear to me that in my darkest of moments I was not where I needed to be. The road ahead was a scary one and even though I had been assured she was "fine", I couldn't help but still be so worried about my baby girl and how the world would perceive her. Up until that point I was in a world where people made comments and stared and because they did not understand what was going on with her they talked about her behind her back. And while she did in fact talk, but often did not respond to her peers when they talked to her, I felt the need to constantly translate for her. And speak for her. I knew what she she wanted and what she meant. I always knew.
When Anabelle was 21 months old I gave birth to a healthy baby boy we named Lennon, after our favorite Beatle. And 15 days later we moved further north for cheaper rent and to be closer to my family. I began to seek interventions and after a lengthy process and being turned down by the Regional Center for free services, (she did not qualify because she was not "delayed enough") we sought out the help of private speech therapy. Which of course was not covered by insurance. I am not a religious person. I have often used the term "I feel blessed" because I was raised in the church and I understand the sentiment behind it. Today I remain religion free and spiritual by nature. I say this because the next sentence I want to write is, "I feel so blessed" to have family who has helped us so tremendously in the past and today. Without the help of my family and my in-laws we would not be where we are today. I was able to sign Anabelle up for speech twice a week and with itty bitty Lennon in tow we had begun our journey of the ever so important early intervention.
Having a baby for me meant I was able to be the mother I always envisioned I would be. I would share moments of firsts with those around us and I would bask in the glow of what being a new mommy most often times means. And I did. Anabelle was such a joy. My sweet angel of a baby who slept and nursed and cried just enough to make me feel needed as her mama. She hit her milestones and did what she was "supposed" to do through her 1st 18 or so months. I had no idea what I was doing as a mother, but I knew she was mine and she was amazing. And Eric... oh man. To see him be a daddy just melted my fricken heart. Still does.
Being a new mom and having a child with behaviors, or a lack of behaviors, that are cause for concern can be so terrifying. And the circle I surrounded myself with at the time lacked the empathy I needed which made me feel completely alone. The only guides I had to go by were my friends babies and by their development, Anabelle was so behind. She just was not doing what they were doing. And instead of building a mountain of support I felt a whisper of "what is wrong with her" and could just feel that all eyes on were on her. I was even told by a friend during a play date that she was told Anabelle is Autistic. Which at that time just crushed me. Absolutely crushed me that the people I trusted to be my friends and with my fears about what could be wrong with my baby girl were talking about her behind our backs. The truth of the matter was Anabelle was developmentally delayed and did not have a diagnosis of Autism. I had taken her to doctor appointments, had her well visits and had her seen by a neurologist and an eye doctor. I put her through assessments and answered 100's of questions. She was just developing at her own pace is what I was told. And I agreed. Being a "late developer" was genetic as I didn't talk much until I was 3 or 4. The puzzle was Anabelle's to put together and she was doing it one piece at a time. And while I could offer her support to help, there was nothing I could do to rush the process.
None of this stopped my closest friends from talking about her as if she was Autistic. And in a world where self doubt was in abundance, the last thing I needed was the shadow of doubt that was cast upon me by those around me. For me that was the end of it. I needed to disconnect. Education was the key and it was clear to me that in my darkest of moments I was not where I needed to be. The road ahead was a scary one and even though I had been assured she was "fine", I couldn't help but still be so worried about my baby girl and how the world would perceive her. Up until that point I was in a world where people made comments and stared and because they did not understand what was going on with her they talked about her behind her back. And while she did in fact talk, but often did not respond to her peers when they talked to her, I felt the need to constantly translate for her. And speak for her. I knew what she she wanted and what she meant. I always knew.
When Anabelle was 21 months old I gave birth to a healthy baby boy we named Lennon, after our favorite Beatle. And 15 days later we moved further north for cheaper rent and to be closer to my family. I began to seek interventions and after a lengthy process and being turned down by the Regional Center for free services, (she did not qualify because she was not "delayed enough") we sought out the help of private speech therapy. Which of course was not covered by insurance. I am not a religious person. I have often used the term "I feel blessed" because I was raised in the church and I understand the sentiment behind it. Today I remain religion free and spiritual by nature. I say this because the next sentence I want to write is, "I feel so blessed" to have family who has helped us so tremendously in the past and today. Without the help of my family and my in-laws we would not be where we are today. I was able to sign Anabelle up for speech twice a week and with itty bitty Lennon in tow we had begun our journey of the ever so important early intervention.
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